I don't have time to say a lot, I am supposed to be packing! We're heading to Wheeler as soon as we all get our things together. We should be home on Sunday, minus Turkey Butt!
So, we had our appointment at the pulmonologist this morning. He was concerned that she wasn't as good as she should be considering all the medications that she has been getting. We're going to continue the breathing treatments three times a day for at least a month. We have to get her well! He has ordered some tests which give me great anxiety and fear.... The first one is actually several blood tests to test for immunity disorders. The second one is a sweat test to check for cystic fibrosis. PLEASE, PLEASE, PLEASE, pray for my baby girl, y'all, I am not sure how strong I can be without knowing the results. I'm really trying to put my faith in God for this, but man, it's hard!
We'll go on Monday to have the tests done. The blood test will take 7-14 days for results and we should know about the sweat test in 48 hours.
I'll update when I know more!
Monday, June 29, 2009
Thursday, June 25, 2009
WHAT?!?!?!?
So, if you've read my posts recently, you know that my baby girl has been struggling with respiratory issues. Ugh! Today, we went to Plano Presby to get what I hoped would be a normal chest x-ray for our follow up appointment on July 7. You can tell where this is going, right??? So, we head that way and hang out for about 1 1/2 hours, good times with two restless children. We get home, I put Sweet Pea down for a late nap and things are good. About 5:30 this afternoon, we get a call from the pulmonologist's office. How has SP been responding to the treatments, is she having any symptoms? I'm thinking, no, she's really been good. Then, the nurse tells me that when the doctor looked at the x-ray, he saw that she still has pneumonia in her lungs. I nearly fell over! Are you kidding me????? The initial plan was to start her on the breathing treatments again and hold out until our July appointment.
Here's where things get strange....during the time of this phone call, SP was still asleep. When she woke up, I went to get her and she was coughing her head off. Then, I was changing her clothes and I could hear her wheezing. I am sure the doctors think I'm a quack, but all of this literally started TODAY.... I called the office back and left a message. The returned my call and gave me a treatment plan. We now have an appointment Monday morning at 8:30, thank goodness! Looks like our trip to the panhandle will have to be postponed a little bit. Sunday was our planned date of departure, but I'm just thankful we have an appointment and are in good hands.
I called my mom sobbing and freaking out. She calmed me down and reassured me that my baby girl is healthy and has just had a hard time getting through this respiratory shit. So, I am calm, but I'm a little worried that there may be a deeper issue going on here... I would really appreciate a few extra prayers and thoughts until we get to the bottom of this!
Thanks!
ADDED LATER: Here's my dilema, do I keep this child home and away from everyone and everything? This will create a very angry and stir crazy mommy. I realize it's not all about me... but, summer is supposed to be swimming, outside, good times, right????
Help a sista out here....
Here's where things get strange....during the time of this phone call, SP was still asleep. When she woke up, I went to get her and she was coughing her head off. Then, I was changing her clothes and I could hear her wheezing. I am sure the doctors think I'm a quack, but all of this literally started TODAY.... I called the office back and left a message. The returned my call and gave me a treatment plan. We now have an appointment Monday morning at 8:30, thank goodness! Looks like our trip to the panhandle will have to be postponed a little bit. Sunday was our planned date of departure, but I'm just thankful we have an appointment and are in good hands.
I called my mom sobbing and freaking out. She calmed me down and reassured me that my baby girl is healthy and has just had a hard time getting through this respiratory shit. So, I am calm, but I'm a little worried that there may be a deeper issue going on here... I would really appreciate a few extra prayers and thoughts until we get to the bottom of this!
Thanks!
ADDED LATER: Here's my dilema, do I keep this child home and away from everyone and everything? This will create a very angry and stir crazy mommy. I realize it's not all about me... but, summer is supposed to be swimming, outside, good times, right????
Help a sista out here....
Friday, June 12, 2009
So I Was Wrong
I was looking at the wrong numbers in blogger, the last post was #92, making this one #93...
That means I have some time to come up with fabulous #100....
That means I have some time to come up with fabulous #100....
This Is What I Know...
Finally, an update, woohoo! My next post will be my 100th, I'm gonna have to think of something good to make it fabulous! It has been a pretty good first week of summer! I've been running around taking kids to appointments, working out, swimming, and even having a sleepover for Turkey Butt. Once again, I stop and think about how blessed I am to work in a profession that allows me to have this time to relax, regroup, and enjoy my family!
We've really been struggling with Sweet Pea and her respiratory issues. I've been fretting over the fact that she will no longer be in a home for care next year, instead, she'll join 20 something other children in a true daycare situation. Since December, I don't think that my baby girl has been 100% well. She chronically has a cough or congestion or drainage. I know my pediatrician is tired of me bugging them, but I figure that's what I pay them for. Finally, we got a referral to a pulmonologist and we were fortunate enough to get in for an appointment this week. It was a very thorough visit. After hearing our story and what we've been dealing with, we have a diagnosis of RAD (reactive airway disease). The doctor also told us that she has the symptoms of an asthmatic. However, toddlers are rarely diagnosed with asthma because 50% of them outgrow their symptoms by age 4. SOOOOOO, we are hopeful, but also concerned. Right now, we are treating her for an ongoing sinus infection. This means 14 days of antibiotics twice a day, Allegra twice a day, 2 breathing treatment medicines three times a day, a nasal spray and saline spray twice a day. The doctor is hoping this will get her completely well and then we can figure out how to keep her well. We return for a visit in early July and I am praying that she will be free from cough and drainage and discomfort. It's been so hard for me to just watch her get sicker and sicker. I call and call the pediatrician's office, but they don't really offer much help as her only symptom has been a chronic cough... Back in the day, when Turkey Butt was little, if something was interfering with his sleeping or eating, we would get a prescription to help him. Gone are those days! I've considered switching doctors for some time and I just keep putting it off...I'm hesitant about starting all over!
So, on to life....my baby is two, my big boy is almost 7! We have baseball camp next week and VBS the following week! After that, we'll head up to the panhandle for the fourth and some family time. We don't have any big plans this summer and that's OK with me! We have Six Flags tickets and we are planning on doing some of the local things around here (not like there's a shortage of things to do!).
Here's the point, I know I am blessed and so very fortunate! Sometimes, I need to be reminded of these things. I thank God daily for all he has provided for me, he is truly good! Now, I am off to put one of these crazy kids to bed and bathe the other one (he hasn't bathed since Monday, such is summer!!).
Happy Summer Y'all!
We've really been struggling with Sweet Pea and her respiratory issues. I've been fretting over the fact that she will no longer be in a home for care next year, instead, she'll join 20 something other children in a true daycare situation. Since December, I don't think that my baby girl has been 100% well. She chronically has a cough or congestion or drainage. I know my pediatrician is tired of me bugging them, but I figure that's what I pay them for. Finally, we got a referral to a pulmonologist and we were fortunate enough to get in for an appointment this week. It was a very thorough visit. After hearing our story and what we've been dealing with, we have a diagnosis of RAD (reactive airway disease). The doctor also told us that she has the symptoms of an asthmatic. However, toddlers are rarely diagnosed with asthma because 50% of them outgrow their symptoms by age 4. SOOOOOO, we are hopeful, but also concerned. Right now, we are treating her for an ongoing sinus infection. This means 14 days of antibiotics twice a day, Allegra twice a day, 2 breathing treatment medicines three times a day, a nasal spray and saline spray twice a day. The doctor is hoping this will get her completely well and then we can figure out how to keep her well. We return for a visit in early July and I am praying that she will be free from cough and drainage and discomfort. It's been so hard for me to just watch her get sicker and sicker. I call and call the pediatrician's office, but they don't really offer much help as her only symptom has been a chronic cough... Back in the day, when Turkey Butt was little, if something was interfering with his sleeping or eating, we would get a prescription to help him. Gone are those days! I've considered switching doctors for some time and I just keep putting it off...I'm hesitant about starting all over!
So, on to life....my baby is two, my big boy is almost 7! We have baseball camp next week and VBS the following week! After that, we'll head up to the panhandle for the fourth and some family time. We don't have any big plans this summer and that's OK with me! We have Six Flags tickets and we are planning on doing some of the local things around here (not like there's a shortage of things to do!).
Here's the point, I know I am blessed and so very fortunate! Sometimes, I need to be reminded of these things. I thank God daily for all he has provided for me, he is truly good! Now, I am off to put one of these crazy kids to bed and bathe the other one (he hasn't bathed since Monday, such is summer!!).
Happy Summer Y'all!
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